Myasthenia gravis

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What is myasthenia gravis?

Myasthenia gravis is a neuromuscular disorder characterized by variable weakness of voluntary muscles, which often improves with rest and worsens with activity. The condition is caused by an abnormal immune response affecting the transmission of signals from nerves to muscles.

Common symptoms reported by people with myasthenia gravis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with myasthenia gravis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Mestinon)
Type
Prescription Drug
How many have tried
22
Tried for
myasthenia gravis (22) double vision (diplopia) (1)
2 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
15
Tried for
myasthenia gravis (15)
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
12
Tried for
myasthenia gravis (12)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
9
Tried for
myasthenia gravis (9)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
4
Tried for
myasthenia gravis (3) slurred speech (1)
Treatment name(s)

(Neoral)
Type
Prescription Drug
How many have tried
2
Tried for
myasthenia gravis (2)
Treatment name(s)
Type
Procedures
How many have tried
2
Tried for
myasthenia gravis (2)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
1
Tried for
myasthenia gravis (1)
Treatment name(s)

(Tylenol with Codeine #3)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with myasthenia gravis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with myasthenia gravis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Mestinon)
Perceived effectiveness
for myasthenia gravis (8 evaluations)
Side effects
diarrhea abdominal cramps 2 more
Total evaluations
8
Tried for
myasthenia gravis (22) double vision (diplopia) (1)
2 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for myasthenia gravis (9 evaluations)
Side effects
blood sugar swings Cushing's syndrome 6 more
Total evaluations
10
Tried for
myasthenia gravis (15)
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for myasthenia gravis (11 evaluations)
Side effects
headaches allergic reaction 1 more
Total evaluations
11
Tried for
myasthenia gravis (12)
Treatment name(s)

(CellCept)
Perceived effectiveness
for myasthenia gravis (8 evaluations)
Side effects
peripheral neuropathy skin sensitivity to sun (photosensitivity) 1 more
Total evaluations
8
Tried for
myasthenia gravis (9)
Treatment name(s)

(Imuran)
Perceived effectiveness
for myasthenia gravis (1 evaluation)
Side effects
upset stomach
Total evaluations
1
Tried for
myasthenia gravis (3) slurred speech (1)
Treatment name(s)

(Neoral)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
myasthenia gravis (2)
Treatment name(s)
Perceived effectiveness
for myasthenia gravis (2 evaluations)
Side effects
nausea
Total evaluations
2
Tried for
myasthenia gravis (2)
Treatment name(s)

(Tylenol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
for myasthenia gravis (1 evaluation)
Side effects
decreased appetite nausea
Total evaluations
1
Tried for
myasthenia gravis (1)
Treatment name(s)

(Tylenol with Codeine #3)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myasthenia gravis, who reported starting treatments within the last 5 years.
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Who has myasthenia gravis on PatientsLikeMe?

  • 5 new patients joined this month
  • 987 say myasthenia gravis is their primary condition

Age
Age Proportion # of patients
<20 13
20s 40
30s 112
40s 214
50s 279
60s 241
70+ 159
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 50
20-29 years 56
30-39 years 81
40-49 years 70
50-59 years 64
60-69 years 33
70+ years 10

Distribution of sex

Sex
Sex Proportion # of patients
Male 278
Female 805

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 413
Not Diagnosed 23

These charts show data from myasthenia gravis patients who have completed their condition history
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