Myasthenia gravis

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What is myasthenia gravis?

Myasthenia gravis is a neuromuscular disorder characterized by variable weakness of voluntary muscles, which often improves with rest and worsens with activity. The condition is caused by an abnormal immune response affecting the transmission of signals from nerves to muscles.

Common symptoms reported by people with myasthenia gravis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with myasthenia gravis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Mestinon)
Type
Prescription Drug
How many have tried
24
Tried for
myasthenia gravis (24) double vision (diplopia) (1)
2 more
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
18
Tried for
myasthenia gravis (18)
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
15
Tried for
myasthenia gravis (15)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
9
Tried for
myasthenia gravis (9)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
5
Tried for
myasthenia gravis (4) slurred speech (1)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3) anxious mood (1)
Treatment name(s)

(Neoral)
Type
Prescription Drug
How many have tried
2
Tried for
myasthenia gravis (2)
Treatment name(s)
Type
Procedures
How many have tried
2
Tried for
myasthenia gravis (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
1
Tried for
myasthenia gravis (1)

Data from patients with myasthenia gravis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with myasthenia gravis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Mestinon)
Perceived effectiveness
for myasthenia gravis (8 evaluations)
Side effects
diarrhea abdominal cramps 2 more
Total evaluations
8
Tried for
myasthenia gravis (24) double vision (diplopia) (1)
2 more
Treatment name(s)

(Deltasone)
Perceived effectiveness
for myasthenia gravis (12 evaluations)
Side effects
weight gain blood sugar swings 6 more
Total evaluations
13
Tried for
myasthenia gravis (18)
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for myasthenia gravis (12 evaluations)
Side effects
headaches allergic reaction 1 more
Total evaluations
12
Tried for
myasthenia gravis (15)
Treatment name(s)

(CellCept)
Perceived effectiveness
for myasthenia gravis (8 evaluations)
Side effects
peripheral neuropathy skin sensitivity to sun (photosensitivity) 1 more
Total evaluations
8
Tried for
myasthenia gravis (9)
Treatment name(s)

(Imuran)
Perceived effectiveness
for myasthenia gravis (2 evaluations)
Side effects
hair loss nausea 1 more
Total evaluations
2
Tried for
myasthenia gravis (4) slurred speech (1)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
weight gain
Total evaluations
1
Tried for
depressed mood (3) anxious mood (1)
Treatment name(s)

(Neoral)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
myasthenia gravis (2)
Treatment name(s)
Perceived effectiveness
for myasthenia gravis (2 evaluations)
Side effects
nausea
Total evaluations
2
Tried for
myasthenia gravis (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
for myasthenia gravis (1 evaluation)
Side effects
decreased appetite nausea
Total evaluations
1
Tried for
myasthenia gravis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myasthenia gravis, who reported starting treatments within the last 5 years.
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Who has myasthenia gravis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 13
20s 42
30s 109
40s 214
50s 280
60s 238
70+ 153
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 50
20-29 years 54
30-39 years 80
40-49 years 70
50-59 years 64
60-69 years 32
70+ years 10

Distribution of sex

Sex
Sex Proportion # of patients
Male 277
Female 797

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 410
Not Diagnosed 23

These charts show data from myasthenia gravis patients who have completed their condition history
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