18p-
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is 18p-?
18p-, also known as 18p minus syndrome or 18p deletion syndrome, is a rare chromosomal abnormality in which there is a deletion in part of the short arm of chromosome 18. Characteristics are varied in each individual but can include cognitive delays, vision problems, and heart defects.
Common symptoms reported by people with 18p-
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with 18p-
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with 18p-, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with 18p-
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
depressed mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with 18p-, who reported starting treatments within the last 5 years.
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Who has 18p- on PatientsLikeMe?
- 16 patients have this condition
- 0 new patients joined this month
- 9 say 18p- is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 1 | |
| 30s | 13 | |
| 40s | 0 | |
| 50s | 0 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 11 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1 | |
| Female | 13 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 11 | |
| Not Diagnosed | 0 |
These charts show data from 18p- patients who have completed their condition history
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