Marfan syndrome
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What is Marfan syndrome?
Marfan's syndrome is a disorder of the connective tissue that is characterized by loss of elasticity. It affects most organs and tissues, especially the skeleton, lungs, eyes, heart, and the aorta.
Common symptoms reported by people with Marfan syndrome
Treatments taken by people for Marfan syndrome
Let’s build this page together! When you share what it’s like to have Marfan syndrome through your profile, those stories and data appear here too.
Got a question about living with Marfan syndrome? Members in the forum might have the answers.
Compare treatments taken by people with Marfan syndrome
Let’s build this page together! When you share what it’s like to have Marfan syndrome through your profile, those stories and data appear here too.
Got a question about living with Marfan syndrome? Members in the forum might have the answers.
Who has Marfan syndrome on PatientsLikeMe?
- 0 new patients joined this month
- 72 say Marfan syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 4 | |
| 20s | 13 | |
| 30s | 17 | |
| 40s | 21 | |
| 50s | 22 | |
| 60s | 17 | |
| 70+ | 5 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 39 | |
| 20-29 years | 7 | |
| 30-39 years | 2 | |
| 40-49 years | 4 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 30 | |
| Female | 68 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 60 | |
| Not Diagnosed | 5 |