Marfan syndrome

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What is Marfan syndrome?

Marfan's syndrome is a disorder of the connective tissue that is characterized by loss of elasticity. It affects most organs and tissues, especially the skeleton, lungs, eyes, heart, and the aorta.

Common symptoms reported by people with Marfan syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for Marfan syndrome

Let’s build this page together! When you share what it’s like to have Marfan syndrome through your profile, those stories and data appear here too.

Got a question about living with Marfan syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Marfan syndrome

Let’s build this page together! When you share what it’s like to have Marfan syndrome through your profile, those stories and data appear here too.

Got a question about living with Marfan syndrome? Members in the forum might have the answers.

Who has Marfan syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 72 say Marfan syndrome is their primary condition

Age
Age Proportion # of patients
<20 4
20s 13
30s 17
40s 21
50s 22
60s 17
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 39
20-29 years 7
30-39 years 2
40-49 years 4
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 30
Female 68

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 60
Not Diagnosed 5

These charts show data from Marfan syndrome patients who have completed their condition history
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