What is macrophage activation syndrome?

Macrophage activation syndrome is the dysregulation of macrophage-lymphocyte interactions leading to uncontrolled proliferation and activation of macrophages and T cells.

How do members experience macrophage activation syndrome?

Top 5 symptoms reported by people with macrophage activation syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for macrophage activation syndrome*

Who has macrophage activation syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 2
30s 3
40s 1
50s 1
60s 1
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 2
Female 8

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What is macrophage activation syndrome?

Macrophage activation syndrome is the dysregulation of macrophage-lymphocyte interactions leading to uncontrolled proliferation and activation of macrophages and T cells.



Common symptoms reported by people with macrophage activation syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for macrophage activation syndrome

Let’s build this page together! When you share what it’s like to have macrophage activation syndrome through your profile, those stories and data appear here too.

Got a question about living with macrophage activation syndrome? Members in the forum might have the answers.


Compare treatments taken by people with macrophage activation syndrome

Let’s build this page together! When you share what it’s like to have macrophage activation syndrome through your profile, those stories and data appear here too.

Got a question about living with macrophage activation syndrome? Members in the forum might have the answers.



Who has macrophage activation syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 7 say macrophage activation syndrome is their primary condition

Age
Age Proportion # of patients
<20 1
20s 2
30s 3
40s 1
50s 1
60s 1
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 8

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 0

These charts show data from macrophage activation syndrome patients who have completed their condition history
Last updated: