Lipodystrophy
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is lipodystrophy?
Lipodystrophy usually infers loss of the fat layer that lies underneath the skin. It may be congenital or acquired later in life. It can affect all of the body (generalized) or just parts of the body (partial).
Common symptoms reported by people with lipodystrophy
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with lipodystrophy
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with lipodystrophy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with lipodystrophy
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with lipodystrophy, who reported starting treatments within the last 5 years.
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Who has lipodystrophy on PatientsLikeMe?
- 19 patients have this condition
- 0 new patients joined this month
- 10 say lipodystrophy is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 2 | |
| 30s | 2 | |
| 40s | 3 | |
| 50s | 4 | |
| 60s | 5 | |
| 70+ | 1 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 1 | |
| 30-39 years | 1 | |
| 40-49 years | 1 | |
| 50-59 years | 1 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 7 | |
| Female | 11 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 5 | |
| Not Diagnosed | 1 |
These charts show data from lipodystrophy patients who have completed their condition history
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