Keratoconus
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is keratoconus?
A noninflammatory, usually bilateral cone-shaped protrusion of the cornea of the eye. It occurs most commonly in females at about the time of puberty. The cause is unknown but hereditary factors may play a role.
Common symptoms reported by people with keratoconus
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with keratoconus
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Intracorneal ring segments
Type
Procedures
How many have tried
1
Tried for
keratoconus
(1)
Data from patients with keratoconus, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with keratoconus
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for pain (3 evaluations)
Side effects
drowsy in morning
Total evaluations
3
Tried for
pain
(2)
Perceived effectiveness
for pain (4 evaluations)
Side effects
bowel problems
constipation
Total evaluations
4
Tried for
pain
(2)
Perceived effectiveness
for keratoconus (1 evaluation)
Side effects
Total evaluations
1
Tried for
keratoconus
(1)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain
(1)
Treatment name(s)
Intracorneal ring segments
Perceived effectiveness
for keratoconus (1 evaluation)
Side effects
visual disturbances (peripheral)
Total evaluations
1
Tried for
keratoconus
(1)
Perceived effectiveness
for pain (2 evaluations)
Side effects
constipation
Total evaluations
2
Tried for
pain
(1)
Perceived effectiveness
for pain (3 evaluations)
Side effects
sleepiness
Total evaluations
5
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with keratoconus, who reported starting treatments within the last 5 years.
Last updated:
Who has keratoconus on PatientsLikeMe?
- 0 new patients joined this month
- 78 say keratoconus is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 7 | |
| 30s | 45 | |
| 40s | 24 | |
| 50s | 21 | |
| 60s | 16 | |
| 70+ | 1 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 15 | |
| 20-29 years | 20 | |
| 30-39 years | 11 | |
| 40-49 years | 2 | |
| 50-59 years | 1 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 68 | |
| Female | 51 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 57 | |
| Not Diagnosed | 1 |
These charts show data from keratoconus patients who have completed their condition history
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