Inclusion body myositis

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What is inclusion body myositis?

Inclusion body myositis (IBM) is an inflammatory muscle disease, characterized by slowly progressive weakness and wasting of muscles, most apparent in the muscles of the arms and legs. There are two types: sporadic inclusion body myositis (sIBM) and hereditary inclusion body myopathy (hIBM).

Common symptoms reported by people with inclusion body myositis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with inclusion body myositis

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Got a question about living with inclusion body myositis? Members in the forum might have the answers.

Compare treatments taken by people with inclusion body myositis

Let’s build this page together! When you share what it’s like to have inclusion body myositis through your profile, those stories and data appear here too.

Got a question about living with inclusion body myositis? Members in the forum might have the answers.

Who has inclusion body myositis on PatientsLikeMe?

  • 2 new patients joined this month
  • 117 say inclusion body myositis is their primary condition

Age
Age Proportion # of patients
<20 0
20s 3
30s 3
40s 2
50s 17
60s 41
70+ 58
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 4
40-49 years 5
50-59 years 13
60-69 years 6
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 69
Female 54

Types
Condition Types Proportion # of patients
Hereditary inclusion body myopathy (hIBM) 3
Sporadic inclusion body myositis (sIBM) 30
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 41
Not Diagnosed 1

These charts show data from inclusion body myositis patients who have completed their condition history
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