Hyperinsulinemic hypoglycemia with nesidioblastosis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is hyperinsulinemic hypoglycemia with nesidioblastosis?
Nesidioblastosis is a condition of abnormal proliferation of islet of Langerhans cells in the pancreas, as a result excess insulin is produced which causes very low blood sugar levels. It usually occurs in the pediatric population as well as in adults who have undergone gastric bypass surgery.
Common symptoms reported by people with hyperinsulinemic hypoglycemia with nesidioblastosis
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with hyperinsulinemic hypoglycemia with nesidioblastosis
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with hyperinsulinemic hypoglycemia with nesidioblastosis, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with hyperinsulinemic hypoglycemia with nesidioblastosis
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
Treatment name(s)
Heating Pad-Hot Packs
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain
(1)
Perceived effectiveness
for pain (1 evaluation)
Side effects
constipation
itching
Total evaluations
1
Tried for
pain
(1)
Perceived effectiveness
for depressed mood (1 evaluation)
Total evaluations
1
Tried for
depressed mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with hyperinsulinemic hypoglycemia with nesidioblastosis, who reported starting treatments within the last 5 years.
Last updated:
Who has hyperinsulinemic hypoglycemia with nesidioblastosis on PatientsLikeMe?
- 15 patients have this condition
- 0 new patients joined this month
- 10 say hyperinsulinemic hypoglycemia with nesidioblastosis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 2 | |
| 40s | 2 | |
| 50s | 1 | |
| 60s | 7 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 0 | |
| 30-39 years | 1 | |
| 40-49 years | 1 | |
| 50-59 years | 3 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 9 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 7 | |
| Not Diagnosed | 1 |
These charts show data from hyperinsulinemic hypoglycemia with nesidioblastosis patients who have completed their condition history
Last updated: