Hepatitis C

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is hepatitis C?

Hepatitis C is a viral disease that leads to inflammation of the liver caused by the hepatitis C virus transmitted primarily by contaminated blood and is often associated with transfusion and IV drug abuse. However, in some case the source of hepatitis C is unknown.

Common symptoms reported by people with hepatitis C

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for hepatitis C

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Harvoni)
Type
Prescription Drug
How many have tried
28
Tried for
hepatitis C (4)
Treatment name(s)

(Copegus)
Type
Prescription Drug
How many have tried
189
Tried for
hepatitis C (1)

Data from patients with hepatitis C, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with hepatitis C

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Harvoni)
Perceived effectiveness
for hepatitis C (5 evaluations)
Side effects
breathing difficulty chest pain 4 more
Total evaluations
5
Tried for
hepatitis C (4)
Treatment name(s)

(Copegus)
Perceived effectiveness
for hepatitis C (2 evaluations)
Side effects
low body temperature
Total evaluations
2
Tried for
hepatitis C (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hepatitis C, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has hepatitis C on PatientsLikeMe?

  • 0 new patients joined this month
  • 483 say hepatitis C is their primary condition

Age
Age Proportion # of patients
<20 0
20s 30
30s 98
40s 140
50s 193
60s 305
70+ 87
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 23
20-29 years 51
30-39 years 59
40-49 years 73
50-59 years 25
60-69 years 5
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 333
Female 521

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 505
Not Diagnosed 14

These charts show data from hepatitis C patients who have completed their condition history
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