What is hemophilia B?

Hemophilia B is a bleeding disorder caused by a lack of blood clotting factor IX. The blood cannot clot properly without the factor IX, therefore patients are at a higher risk for bleeding. Symptoms include prolonged bleeding, pain in joints, and bruising.

How do members experience hemophilia B?

Top 5 symptoms reported by people with hemophilia B*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for hemophilia B*

Who has hemophilia B on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 6
30s 7
40s 4
50s 5
60s 3
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 15
Female 10

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What is hemophilia B?

Hemophilia B is a bleeding disorder caused by a lack of blood clotting factor IX. The blood cannot clot properly without the factor IX, therefore patients are at a higher risk for bleeding. Symptoms include prolonged bleeding, pain in joints, and bruising.



Common symptoms reported by people with hemophilia B

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for hemophilia B

Let’s build this page together! When you share what it’s like to have hemophilia B through your profile, those stories and data appear here too.

Got a question about living with hemophilia B? Members in the forum might have the answers.


Compare treatments taken by people with hemophilia B

Let’s build this page together! When you share what it’s like to have hemophilia B through your profile, those stories and data appear here too.

Got a question about living with hemophilia B? Members in the forum might have the answers.



Who has hemophilia B on PatientsLikeMe?

  • 0 new patients joined this month
  • 20 say hemophilia B is their primary condition

Age
Age Proportion # of patients
<20 0
20s 6
30s 7
40s 4
50s 5
60s 3
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 15
Female 10

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8
Not Diagnosed 0

These charts show data from hemophilia B patients who have completed their condition history
Last updated: