Hemophilia B
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What is hemophilia B?
Hemophilia B is a bleeding disorder caused by a lack of blood clotting factor IX. The blood cannot clot properly without the factor IX, therefore patients are at a higher risk for bleeding. Symptoms include prolonged bleeding, pain in joints, and bruising.
Common symptoms reported by people with hemophilia B
Common symptoms
How bad it is
What people are taking for it
Common symptom
Nosebleeds (epistaxis)
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with hemophilia B
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with hemophilia B, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hemophilia B
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
hemophilia B
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with hemophilia B, who reported starting treatments within the last 5 years.
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Who has hemophilia B on PatientsLikeMe?
- 26 patients have this condition
- 0 new patients joined this month
- 18 say hemophilia B is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 5 | |
| 30s | 6 | |
| 40s | 5 | |
| 50s | 6 | |
| 60s | 0 | |
| 70+ | 1 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 5 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 15 | |
| Female | 9 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 8 | |
| Not Diagnosed | 1 |
These charts show data from hemophilia B patients who have completed their condition history
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