What is glycogen storage disease?
Glycogen storage disease is an inherited disorder caused by the buildup of a complex sugar called glycogen in the body's cells. The accumulation of glycogen in certain organs and tissues, especially the liver, kidneys, and small intestines, impairs their ability to function normally.
How do members experience glycogen storage disease?
Top 5 symptoms reported by people with glycogen storage disease*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Weakness in leg(s)
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Chronic fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Shortness of breath with exertion
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for glycogen storage disease*
Who has glycogen storage disease on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 4 | |
| 30s | 8 | |
| 40s | 7 | |
| 50s | 6 | |
| 60s | 5 | |
| 70+ | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 13 | |
| Female | 20 |