What is epidermolysis bullosa simplex?
Epidermolysis bullosa simplex is an inherited (genetic) condition that cause the skin to be very fragile and to blister easily. It is usually confined to the hands and feet. With aging, the palms and soles of the feet thicken and harden.
How do members experience epidermolysis bullosa simplex?
Top 5 symptoms reported by people with epidermolysis bullosa simplex*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for epidermolysis bullosa simplex*
Who has epidermolysis bullosa simplex on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 1 | |
20s | 3 | |
30s | 3 | |
40s | 7 | |
50s | 3 | |
60s | 2 | |
70+ | 0 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 8 | |
Female | 12 |