What is distal arthrogryposis?
Distal arthrogryposis syndrome is a rare genetic disorder in which affected individuals are born with a characteristic bending at the joints of the hands and feet. A contracture is the word used to describe what happens at the joints to cause this bending.
How do members experience distal arthrogryposis?
Top 5 symptoms reported by people with distal arthrogryposis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for distal arthrogryposis*
Who has distal arthrogryposis on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 0 | |
20s | 0 | |
30s | 1 | |
40s | 1 | |
50s | 2 | |
60s | 2 | |
70+ | 1 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 2 | |
Female | 5 |