Distal arthrogryposis
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What is distal arthrogryposis?
Distal arthrogryposis syndrome is a rare genetic disorder in which affected individuals are born with a characteristic bending at the joints of the hands and feet. A contracture is the word used to describe what happens at the joints to cause this bending.
Common symptoms reported by people with distal arthrogryposis
Treatments taken by people with distal arthrogryposis
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Compare treatments taken by people with distal arthrogryposis
Let’s build this page together! When you share what it’s like to have distal arthrogryposis through your profile, those stories and data appear here too.
Got a question about living with distal arthrogryposis? Members in the forum might have the answers.
Who has distal arthrogryposis on PatientsLikeMe?
- 7 patients have this condition
- 0 new patients joined this month
- 5 say distal arthrogryposis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 1 | |
| 40s | 1 | |
| 50s | 1 | |
| 60s | 1 | |
| 70+ | 1 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1 | |
| Female | 5 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 2 | |
| Not Diagnosed | 0 |
Let’s build this page together! When you share what it’s like to have distal arthrogryposis through your profile, those stories and data appear here too.
Got a question about living with distal arthrogryposis? Members in the forum might have the answers.