Diffuse idiopathic pulmonary neuroendocrine cell hyperplasia

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What is diffuse idiopathic pulmonary neuroendocrine cell hyperplasia?

Diffuse idiopathic pulmonary neuroendocrine cell hyperplasia is a rare disorder. The majority of patients are middle-aged women who present with symptoms of cough and dyspnea, obstructive abnormalities on pulmonary function testing and pulmonary nodules, and bronchiectasis.

Common symptoms reported by people with diffuse idiopathic pulmonary neuroendocrine cell hyperplasia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with diffuse idiopathic pulmonary neuroendocrine cell hyperplasia

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Compare treatments taken by people with diffuse idiopathic pulmonary neuroendocrine cell hyperplasia

Let’s build this page together! When you share what it’s like to have diffuse idiopathic pulmonary neuroendocrine cell hyperplasia through your profile, those stories and data appear here too.

Got a question about living with diffuse idiopathic pulmonary neuroendocrine cell hyperplasia? Members in the forum might have the answers.

Who has diffuse idiopathic pulmonary neuroendocrine cell hyperplasia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 0
40s 3
50s 11
60s 19
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 2
40-49 years 6
50-59 years 4
60-69 years 2
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 39

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 18
Not Diagnosed 1

These charts show data from DIPNECH patients who have completed their condition history
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