What is desmoid tumor?

A desmoid tumor, also known as aggressive fibromatosis, is a non-cancerous soft-tissue tumor; it can be locally aggressive and may recur after surgical treatment.

How do members experience desmoid tumor?

Top 5 symptoms reported by people with desmoid tumor*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for desmoid tumor*

Who has desmoid tumor on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 1
30s 10
40s 16
50s 17
60s 10
70+ 3

Distribution of sex

Sex

Sex Proportion # of patients
Male 11
Female 48