What is Dandy-Walker syndrome?

Dandy-Walker Syndrome is a congenital brain malformation involving the cerebellum (an area at the back of the brain that controls movement) and the fluid-filled spaces around it.

How do members experience Dandy-Walker syndrome?

Top 5 symptoms reported by people with Dandy-Walker syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Dandy-Walker syndrome*

Who has Dandy-Walker syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 4
30s 4
40s 3
50s 4
60s 2
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 4
Female 15

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What is Dandy-Walker syndrome?

Dandy-Walker Syndrome is a congenital brain malformation involving the cerebellum (an area at the back of the brain that controls movement) and the fluid-filled spaces around it.



Common symptoms reported by people with Dandy-Walker syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Dandy-Walker syndrome

Let’s build this page together! When you share what it’s like to have Dandy-Walker syndrome through your profile, those stories and data appear here too.

Got a question about living with Dandy-Walker syndrome? Members in the forum might have the answers.


Compare treatments taken by people with Dandy-Walker syndrome

Let’s build this page together! When you share what it’s like to have Dandy-Walker syndrome through your profile, those stories and data appear here too.

Got a question about living with Dandy-Walker syndrome? Members in the forum might have the answers.



Who has Dandy-Walker syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 10 say Dandy-Walker syndrome is their primary condition

Age
Age Proportion # of patients
<20 1
20s 4
30s 4
40s 3
50s 4
60s 2
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 1
30-39 years 1
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 15

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8
Not Diagnosed 1

These charts show data from Dandy-Walker syndrome patients who have completed their condition history
Last updated: