Cystic fibrosis

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is cystic fibrosis?

Cystic fibrosis is a rare genetic condition in which certain glands produce abnormally thick mucus. This mucus can cause problems in digestion, breathing, and body cooling. There are over 1900 known mutations that can cause CF. Treatments may include specific drugs and lifestyle changes.

Common symptoms reported by people with cystic fibrosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for cystic fibrosis

Let’s build this page together! When you share what it’s like to have cystic fibrosis through your profile, those stories and data appear here too.

Got a question about living with cystic fibrosis? Members in the forum might have the answers.

Compare treatments taken by people with cystic fibrosis

Let’s build this page together! When you share what it’s like to have cystic fibrosis through your profile, those stories and data appear here too.

Got a question about living with cystic fibrosis? Members in the forum might have the answers.

Who has cystic fibrosis on PatientsLikeMe?

  • 0 new patients joined this month
  • 1207 say cystic fibrosis is their primary condition

Age
Age Proportion # of patients
<20 113
20s 272
30s 353
40s 213
50s 143
60s 61
70+ 16
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 493
20-29 years 10
30-39 years 6
40-49 years 6
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 366
Female 802

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 719
Not Diagnosed 20

These charts show data from cystic fibrosis patients who have completed their condition history
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