Common variable immune deficiency

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What is common variable immune deficiency?

Common variable immune deficiency (CVID) is a primary immunodeficiency, a disorder in which part of the body's immune system is missing or does not function properly. CVID is believed to be a genetically determined primary immune defect; however, the underlying causes are different.

Common symptoms reported by people with common variable immune deficiency

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with common variable immune deficiency

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
12
Treatment name(s)

(Hizentra)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
fatigue (2)
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Dilaudid)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
fatigue (1)

Data from patients with common variable immune deficiency, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with common variable immune deficiency

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for common variable immune deficiency (11 evaluations)
Side effects
headaches flu like symptoms 13 more
Total evaluations
11
Treatment name(s)

(Hizentra)
Perceived effectiveness
for common variable immune deficiency (8 evaluations)
Side effects
injection site swelling fatigue 9 more
Total evaluations
8
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
skin picking (dermatillomania)
Total evaluations
1
Tried for
fatigue (2)
Treatment name(s)

(Celebrex)
Perceived effectiveness
for pain (3 evaluations)
Side effects
Total evaluations
3
Tried for
pain (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (3 evaluations)
Side effects
drowsiness
Total evaluations
3
Tried for
pain (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Dilaudid)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Plaquenil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with common variable immune deficiency, who reported starting treatments within the last 5 years.
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Who has common variable immune deficiency on PatientsLikeMe?


Age
Age Proportion # of patients
<20 13
20s 19
30s 42
40s 89
50s 121
60s 101
70+ 31
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 70
20-29 years 25
30-39 years 32
40-49 years 24
50-59 years 19
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 75
Female 352

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 221
Not Diagnosed 6

These charts show data from common variable immune deficiency patients who have completed their condition history
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