Cushing's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Cushing's disease?

Cushing's disease is caused by pituitary corticotropin (ACTH)-secreting tumors, which are typically microadenomas. Treatment typically involves surgery or radiation of the pituitary gland. When surgery is successful, the patient is cured. Occasionally, further treatment is necessary.

Common symptoms reported by people with Cushing's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Cushing's disease

Let’s build this page together! When you share what it’s like to have Cushing's disease through your profile, those stories and data appear here too.

Got a question about living with Cushing's disease? Members in the forum might have the answers.

Compare treatments taken by people with Cushing's disease

Let’s build this page together! When you share what it’s like to have Cushing's disease through your profile, those stories and data appear here too.

Got a question about living with Cushing's disease? Members in the forum might have the answers.

Who has Cushing's disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 58 say Cushing's disease is their primary condition

Age
Age Proportion # of patients
<20 1
20s 8
30s 8
40s 15
50s 19
60s 14
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 3
30-39 years 4
40-49 years 8
50-59 years 2
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 9
Female 56

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 22
Not Diagnosed 0

These charts show data from Cushing's disease patients who have completed their condition history
Last updated: