Cryptogenic organizing pneumonia
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is cryptogenic organizing pneumonia?
Cryptogenic Organizing Pneumonia is a chronic inflammation and granulation of the bronchioles and alveoli in the lungs. It is also known as Bronchiolitis obliterans Organizing Pneumonia (BOOP) but should not be confused with another condition called obliterative bronchiolitis.
Common symptoms reported by people with cryptogenic organizing pneumonia
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with cryptogenic organizing pneumonia
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Oxygen therapy
Type
Prescription Drug
How many have tried
1
Tried for
cryptogenic organizing pneumonia
(1)
Data from patients with cryptogenic organizing pneumonia, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with cryptogenic organizing pneumonia
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for cryptogenic organizing pneumonia (1 evaluation)
Side effects
weight gain
Total evaluations
1
Tried for
cryptogenic organizing pneumonia
(3)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue
(1)
Perceived effectiveness
for pain (1 evaluation)
Side effects
memory and cognition problems
Total evaluations
1
Tried for
pain
(1)
Treatment name(s)
Oxygen therapy
Perceived effectiveness
for cryptogenic organizing pneumonia (1 evaluation)
Side effects
Total evaluations
1
Tried for
cryptogenic organizing pneumonia
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with cryptogenic organizing pneumonia, who reported starting treatments within the last 5 years.
Last updated:
Who has cryptogenic organizing pneumonia on PatientsLikeMe?
- 63 patients have this condition
- 1 new patients joined this month
- 34 say cryptogenic organizing pneumonia is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 3 | |
| 40s | 8 | |
| 50s | 20 | |
| 60s | 18 | |
| 70+ | 9 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 0 | |
| 20-29 years | 0 | |
| 30-39 years | 2 | |
| 40-49 years | 2 | |
| 50-59 years | 5 | |
| 60-69 years | 4 | |
| 70+ years | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 19 | |
| Female | 39 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 19 | |
| Not Diagnosed | 2 |
These charts show data from cryptogenic organizing pneumonia patients who have completed their condition history
Last updated: