What is congenital anosmia?

Congenital anosmia literally means ‘the absence of the sense of smell since birth’. The cause is unknown.

How do members experience congenital anosmia?

Top 5 symptoms reported by people with congenital anosmia*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for congenital anosmia*

Who has congenital anosmia on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 7
30s 9
40s 7
50s 3
60s 5
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 14
Female 19

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What is congenital anosmia?

Congenital anosmia literally means ‘the absence of the sense of smell since birth’. The cause is unknown.



Common symptoms reported by people with congenital anosmia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for congenital anosmia

Let’s build this page together! When you share what it’s like to have congenital anosmia through your profile, those stories and data appear here too.

Got a question about living with congenital anosmia? Members in the forum might have the answers.


Compare treatments taken by people with congenital anosmia

Let’s build this page together! When you share what it’s like to have congenital anosmia through your profile, those stories and data appear here too.

Got a question about living with congenital anosmia? Members in the forum might have the answers.



Who has congenital anosmia on PatientsLikeMe?

  • 0 new patients joined this month
  • 27 say congenital anosmia is their primary condition

Age
Age Proportion # of patients
<20 2
20s 7
30s 9
40s 7
50s 3
60s 5
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 14
Female 19

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7
Not Diagnosed 4

These charts show data from congenital anosmia patients who have completed their condition history
Last updated: