Chronic headache disorder

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is chronic headache disorder?

Chronic headache, or chronic daily headache (CDH), is classified as experiencing fifteen or more days with a headache per month.

Common symptoms reported by people with chronic headache disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with chronic headache disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
5
Tried for
pain (3) chronic headache disorder (2)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Manual fold up)
Type
Equipment
How many have tried
3
Tried for
fatigue (3) pain (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(CoQ10 Soft Gels)
Type
Supplement
How many have tried
2
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)

Data from patients with chronic headache disorder, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with chronic headache disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
drowsiness
Total evaluations
1
Tried for
pain (3) chronic headache disorder (2)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
drowsiness
Total evaluations
1
Tried for
anxious mood (3)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (3)
Treatment name(s)

(Manual fold up)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (3) pain (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
for pain (1 evaluation)
Side effects
chronic constipation
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (1 evaluation)
Side effects
dry eyes
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
drowsiness
Total evaluations
3
Tried for
depressed mood (2)
Treatment name(s)

(CoQ10 Soft Gels)
Perceived effectiveness
for chronic headache disorder (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic headache disorder, who reported starting treatments within the last 5 years.
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Who has chronic headache disorder on PatientsLikeMe?


Age
Age Proportion # of patients
<20 8
20s 65
30s 123
40s 157
50s 148
60s 76
70+ 29
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 102
20-29 years 74
30-39 years 54
40-49 years 34
50-59 years 13
60-69 years 2
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 115
Female 492

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 283
Not Diagnosed 79

These charts show data from chronic headache disorder patients who have completed their condition history
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