Chronic headache disorder

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is chronic headache disorder?

Chronic headache, or chronic daily headache (CDH), is classified as experiencing fifteen or more days with a headache per month.

Common symptoms reported by people with chronic headache disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with chronic headache disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Voltaren)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
4
Tried for
chronic headache disorder (2) pain (2)
Treatment name(s)

(Invacare Manual Wheelchair)
Type
Equipment
How many have tried
3
Tried for
fatigue (3) pain (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
fatigue (2)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (1) depressed mood (1)

Data from patients with chronic headache disorder, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with chronic headache disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Voltaren)
Perceived effectiveness
for pain (2 evaluations)
Side effects
rashes (redness, swelling)
Total evaluations
2
Tried for
pain (4)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
chronic headache disorder (2) pain (2)
Treatment name(s)

(Invacare Manual Wheelchair)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (3) pain (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (2)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
for pain (1 evaluation)
Side effects
chronic constipation
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (1 evaluation)
Side effects
dry eyes
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
drowsiness
Total evaluations
3
Tried for
depressed mood (2)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
drowsiness
Total evaluations
2
Tried for
anxious mood (2)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
increased sleepiness
Total evaluations
2
Tried for
anxious mood (1) depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic headache disorder, who reported starting treatments within the last 5 years.
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Who has chronic headache disorder on PatientsLikeMe?

  • 307 new patients joined this month
  • 711 say chronic headache disorder is their primary condition

Age
Age Proportion # of patients
<20 9
20s 69
30s 162
40s 258
50s 281
60s 186
70+ 71
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 107
20-29 years 76
30-39 years 58
40-49 years 34
50-59 years 15
60-69 years 2
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 166
Female 875

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 299
Not Diagnosed 81

These charts show data from chronic headache disorder patients who have completed their condition history
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