What is Chediak-Higashi syndrome?
Chediak-Higashi Syndrome is a very rare condition characterized by problems with the immune and nervous systems. Individuals with the disease often have very pale skin, hair, and eyes, and are susceptible to increased infections in the lungs, skin, and mucous membranes.
How do members experience Chediak-Higashi syndrome?
Top 5 symptoms reported by people with Chediak-Higashi syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Chediak-Higashi syndrome*
Who has Chediak-Higashi syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 0 | |
| 30s | 1 | |
| 40s | 1 | |
| 50s | 0 | |
| 60s | 0 | |
| 70+ | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 1 |