Myalgic encephalomyelitis/chronic fatigue syndrome
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What is myalgic encephalomyelitis/chronic fatigue syndrome?
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.
Common symptoms reported by people with myalgic encephalomyelitis/chronic fatigue syndrome
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for myalgic encephalomyelitis/chronic fatigue syndrome
Treatment name(s)
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
5201
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(35)
Type
Prescription Drug
How many have tried
6129
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(16)
Type
Prescription Drug
How many have tried
42
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(11)
Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with myalgic encephalomyelitis/chronic fatigue syndrome
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (17 evaluations)
Total evaluations
23
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(35)
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (5 evaluations)
Total evaluations
14
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(16)
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (5 evaluations)
Total evaluations
5
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(11)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has myalgic encephalomyelitis/chronic fatigue syndrome on PatientsLikeMe?
- 17 new patients joined this month
- 4191 say ME/CFS is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 20 | |
| 20s | 432 | |
| 30s | 1647 | |
| 40s | 4056 | |
| 50s | 6241 | |
| 60s | 4490 | |
| 70+ | 1332 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1103 | |
| 20-29 years | 1476 | |
| 30-39 years | 1844 | |
| 40-49 years | 1425 | |
| 50-59 years | 512 | |
| 60-69 years | 68 | |
| 70+ years | 8 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1516 | |
| Female | 16825 |
| Condition Types | Proportion | # of patients |
|---|---|---|
| Chronic fatigue immune dysfunction syndrome (CFIDS) | 646 | |
| Chronic fatigue syndrome (CFS) | 2021 | |
| Myalgic encephalomyelitis (ME) | 1032 | |
| Neuroendocrine immune disorder | 165 | |
| Post-viral fatigue syndrome (PVFS) | 351 | |
| Systemic exertion intolerance disease (SEID) | 50 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 8442 | |
| Not Diagnosed | 3848 |
These charts show data from ME/CFS patients who have completed their condition history
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