Myalgic encephalomyelitis/chronic fatigue syndrome
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What is myalgic encephalomyelitis/chronic fatigue syndrome?
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.
Common symptoms reported by people with myalgic encephalomyelitis/chronic fatigue syndrome
Common symptoms
How bad it is
What people are taking for it
Common symptom
Excessive daytime sleepiness (somnolence)
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for myalgic encephalomyelitis/chronic fatigue syndrome
Treatment name(s)
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
43
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(10)
Type
Prescription Drug
How many have tried
5247
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(10)
Type
Prescription Drug
How many have tried
6181
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(2)
Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with myalgic encephalomyelitis/chronic fatigue syndrome
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (5 evaluations)
Total evaluations
5
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(10)
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (2 evaluations)
Side effects
headaches
Total evaluations
2
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(10)
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (1 evaluation)
Side effects
Total evaluations
1
Tried for
myalgic encephalomyelitis/chronic fatigue syndrome
(2)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has myalgic encephalomyelitis/chronic fatigue syndrome on PatientsLikeMe?
- 3 new patients joined this month
- 4269 say ME/CFS is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 15 | |
| 20s | 329 | |
| 30s | 1303 | |
| 40s | 3514 | |
| 50s | 6135 | |
| 60s | 5155 | |
| 70+ | 1947 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1096 | |
| 20-29 years | 1471 | |
| 30-39 years | 1837 | |
| 40-49 years | 1421 | |
| 50-59 years | 512 | |
| 60-69 years | 70 | |
| 70+ years | 8 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1551 | |
| Female | 16974 |
| Condition Types | Proportion | # of patients |
|---|---|---|
| Chronic fatigue immune dysfunction syndrome (CFIDS) | 664 | |
| Chronic fatigue syndrome (CFS) | 2078 | |
| Myalgic encephalomyelitis (ME) | 1067 | |
| Neuroendocrine immune disorder | 170 | |
| Post-viral fatigue syndrome (PVFS) | 363 | |
| Systemic exertion intolerance disease (SEID) | 66 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 8427 | |
| Not Diagnosed | 3840 |
These charts show data from ME/CFS patients who have completed their condition history
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