Myalgic encephalomyelitis/chronic fatigue syndrome

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What is myalgic encephalomyelitis/chronic fatigue syndrome?

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome which may also be known as Systemic exertion intolerance disease is characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer.

Common symptoms reported by people with myalgic encephalomyelitis/chronic fatigue syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for myalgic encephalomyelitis/chronic fatigue syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
5206
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
6135
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
42

Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with myalgic encephalomyelitis/chronic fatigue syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lyrica)
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (16 evaluations)
Side effects
anxious mood brain fog 20 more
Total evaluations
20
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (4 evaluations)
Side effects
headaches weight gain 53 more
Total evaluations
13
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for myalgic encephalomyelitis/chronic fatigue syndrome (6 evaluations)
Side effects
emotional distress insomnia 1 more
Total evaluations
6
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myalgic encephalomyelitis/chronic fatigue syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has myalgic encephalomyelitis/chronic fatigue syndrome on PatientsLikeMe?

  • 10 new patients joined this month
  • 4198 say ME/CFS is their primary condition

Age
Age Proportion # of patients
<20 19
20s 421
30s 1603
40s 4013
50s 6249
60s 4553
70+ 1382
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1103
20-29 years 1475
30-39 years 1841
40-49 years 1425
50-59 years 512
60-69 years 68
70+ years 8

Distribution of sex

Sex
Sex Proportion # of patients
Male 1523
Female 16841

Types
Condition Types Proportion # of patients
Chronic fatigue immune dysfunction syndrome (CFIDS) 649
Chronic fatigue syndrome (CFS) 2030
Myalgic encephalomyelitis (ME) 1033
Neuroendocrine immune disorder 165
Post-viral fatigue syndrome (PVFS) 352
Systemic exertion intolerance disease (SEID) 52
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 8442
Not Diagnosed 3850

These charts show data from ME/CFS patients who have completed their condition history
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