Bone necrosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is bone necrosis?

Bone necrosis, also called avascular necrosis is a disease resulting from the temporary or permanent loss of the blood supply to the bones. Without blood, the bone and tissue surrounding it dies, which causes the bone to deteriorate, often leading to collapse of a joint.

Common symptoms reported by people with bone necrosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with bone necrosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
pain (2) anxious mood (1)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
2
Tried for
bone necrosis (1) pain (1)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Remeron)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Type
Surgery
How many have tried
2
Tried for
bone necrosis (2)
Treatment name(s)

(Walking cane/rubber tip)
Type
Equipment
How many have tried
2
Tried for
bone necrosis (2)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)

Data from patients with bone necrosis, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with bone necrosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
brain fog
Total evaluations
1
Tried for
pain (2) anxious mood (1)
Treatment name(s)

(Zoloft)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (3)
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (3)
Treatment name(s)

(Tylenol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
bone necrosis (1) pain (1)
Treatment name(s)

(Abilify)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
dizziness with hypotension upon standing insomnia 4 more
Total evaluations
4
Tried for
depressed mood (2)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Remeron)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
irritability
Total evaluations
2
Tried for
depressed mood (2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
bone necrosis (2)
Treatment name(s)

(Walking cane/rubber tip)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
bone necrosis (2)
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
post exertional fatigue or malaise
Total evaluations
1
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with bone necrosis, who reported starting treatments within the last 5 years.
Last updated:

Who has bone necrosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 3
30s 46
40s 80
50s 89
60s 59
70+ 24
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 34
30-39 years 42
40-49 years 28
50-59 years 21
60-69 years 5
70+ years 3

Distribution of sex

Sex
Sex Proportion # of patients
Male 88
Female 215

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 195
Not Diagnosed 2

These charts show data from bone necrosis patients who have completed their condition history
Last updated: