What is Batten disease?
Batten disease or juvenile neuronal ceroid lipofuscinoses is a neurodegenerative condition that typically begins in childhood. Some characteristics include progressive vision loss, loss of muscle coordination, and seizures.
How do members experience Batten disease?
Top 5 symptoms reported by people with Batten disease*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Batten disease*
Who has Batten disease on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 1 | |
20s | 2 | |
30s | 2 | |
40s | 2 | |
50s | 0 | |
60s | 0 | |
70+ | 0 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 5 | |
Female | 2 |