Acute intermittent porphyria

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What is acute intermittent porphyria?

Acute intermittent porphyria is a rare genetic disorder that primarily affects the nervous system. It is characterized by intermittent acute episodes of abdominal, mental and neurological symptoms that appear quickly and usually last a short time.

Common symptoms reported by people with acute intermittent porphyria

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with acute intermittent porphyria

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Got a question about living with acute intermittent porphyria? Members in the forum might have the answers.

Compare treatments taken by people with acute intermittent porphyria

Let’s build this page together! When you share what it’s like to have acute intermittent porphyria through your profile, those stories and data appear here too.

Got a question about living with acute intermittent porphyria? Members in the forum might have the answers.

Who has acute intermittent porphyria on PatientsLikeMe?

  • 0 new patients joined this month
  • 44 say acute intermittent porphyria is their primary condition

Age
Age Proportion # of patients
<20 0
20s 3
30s 6
40s 14
50s 15
60s 15
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 16
20-29 years 7
30-39 years 4
40-49 years 1
50-59 years 2
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 10
Female 50

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 30
Not Diagnosed 4

These charts show data from acute intermittent porphyria patients who have completed their condition history
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