What is acute intermittent porphyria?
Acute intermittent porphyria is a rare genetic disorder that primarily affects the nervous system. It is characterized by intermittent acute episodes of abdominal, mental and neurological symptoms that appear quickly and usually last a short time.
How do members experience acute intermittent porphyria?
Top 5 symptoms reported by people with acute intermittent porphyria*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Excessive gas
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Feeling faint (presyncope)
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Hives (urticaria)
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Abdominal pain
How bad it is
What people are taking for it
Common symptom
Abdominal bloating
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for acute intermittent porphyria*
Who has acute intermittent porphyria on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 3 | |
| 30s | 7 | |
| 40s | 15 | |
| 50s | 16 | |
| 60s | 19 | |
| 70+ | 8 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 10 | |
| Female | 59 |