Polycystic liver disease

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What is polycystic liver disease?

Polycystic Liver Disease is inherited either with liver cysts alone or with both liver and kidney cysts. The liver tissue becomes infused with cysts, resulting in a hardening of the liver texture.

Common symptoms reported by people with polycystic liver disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with polycystic liver disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Myochrysine)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)

Data from patients with polycystic liver disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with polycystic liver disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
Total evaluations
3
Tried for
depressed mood (1)
Treatment name(s)

(Myochrysine)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
Total evaluations
4
Tried for
Pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with polycystic liver disease, who reported starting treatments within the last 5 years.
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Who has polycystic liver disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 1
40s 14
50s 18
60s 10
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 1
30-39 years 4
40-49 years 4
50-59 years 3
60-69 years 2
70+ years 0

Sex

Distribution of sex

90% Female
10% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26
Not Diagnosed 0

These charts show data from polycystic liver disease patients who have completed their condition history
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