Primary hyperoxaluria

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What is primary hyperoxaluria?

Primary hyperoxaluria is a rare condition characterized by the overproduction of oxalate, which when combined with calcium leads to kidney stones and other kidney problems. It is caused by the deficiency of either AGXT or GRHPR, enzymes that normally prevent the buildup of oxalate.

Common symptoms reported by people with primary hyperoxaluria

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with primary hyperoxaluria

No data

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Got a question about living with primary hyperoxaluria? Members in the forum might have the answers.

Compare treatments taken by people with primary hyperoxaluria

No data

Let’s build this page together! When you share what it’s like to have primary hyperoxaluria through your profile, those stories and data appear here too.

Got a question about living with primary hyperoxaluria? Members in the forum might have the answers.

Who has primary hyperoxaluria on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 1
40s 2
50s 1
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 5

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from primary hyperoxaluria patients who have completed their condition history
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