Central hypothyroidism

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is central hypothyroidism?

Central hypothyroidism is defined as a reduction in circulating thyroid hormone as a result of inadequate stimulation of a normal thyroid gland by TSH and may be secondary, due to pituitary disease, or tertiary, due to hypothalamic dysfunction.

Common symptoms reported by people with central hypothyroidism

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with central hypothyroidism

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Synthroid)
Type
Prescription Drug
How many have tried
3
Tried for
central hypothyroidism (3)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Cortate)
Type
Prescription Drug
How many have tried
1
Tried for
central hypothyroidism (1) pain (1)
Treatment name(s)

(DHEA cream)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Lodine)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Cytomel)
Type
Prescription Drug
How many have tried
1
Tried for
central hypothyroidism (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)

Data from patients with central hypothyroidism, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with central hypothyroidism

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Synthroid)
Perceived effectiveness
for central hypothyroidism (1 evaluation)
Side effects
Total evaluations
1
Tried for
central hypothyroidism (3)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
constipation
Total evaluations
2
Tried for
fatigue (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
drooling especially at night
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Cortate)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
central hypothyroidism (1) pain (1)
Treatment name(s)

(DHEA cream)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Lodine)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Cytomel)
Perceived effectiveness
for central hypothyroidism (1 evaluation)
Side effects
Total evaluations
1
Tried for
central hypothyroidism (1)
Treatment name(s)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
constipation
Total evaluations
1
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with central hypothyroidism, who reported starting treatments within the last 5 years.
Last updated:

Who has central hypothyroidism on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 8
40s 13
50s 28
60s 18
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 4
20-29 years 6
30-39 years 4
40-49 years 8
50-59 years 5
60-69 years 0
70+ years 0

Sex

Distribution of sex

95% Female
5% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 38
Not Diagnosed 3

These charts show data from central hypothyroidism patients who have completed their condition history
Last updated: