Lambert-Eaton myasthenic syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Lambert-Eaton myasthenic syndrome?

Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune disorder of the neuromuscular junction where nerve cells meet muscle cells and help activate the muscles. It is caused by a disruption of electrical impulses between these nerve and muscle cells.

Common symptoms reported by people with Lambert-Eaton myasthenic syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Lambert-Eaton myasthenic syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Mestinon)
Type
Prescription Drug
How many have tried
2
Type
Prescription Drug
How many have tried
1
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
1
Treatment name(s)
Type
Nutrition/Diet
How many have tried
1

Data from patients with Lambert-Eaton myasthenic syndrome, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Lambert-Eaton myasthenic syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Mestinon)
Perceived effectiveness
for Lambert-Eaton myasthenic syndrome (1 evaluation)
Side effects
burning pain in soles of feet
Total evaluations
1
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Nuvigil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for Lambert-Eaton myasthenic syndrome (1 evaluation)
Side effects
anxious mood bone pain 18 more
Total evaluations
1
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Lambert-Eaton myasthenic syndrome, who reported starting treatments within the last 5 years.
Last updated:

Who has Lambert-Eaton myasthenic syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 4
40s 7
50s 4
60s 12
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 2
30-39 years 2
40-49 years 3
50-59 years 5
60-69 years 1
70+ years 0

Sex

Distribution of sex

69% Female
31% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 12
Not Diagnosed 2

These charts show data from Lambert-Eaton myasthenic syndrome patients who have completed their condition history
Last updated: