Porphyria cutanea tarda

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What is porphyria cutanea tarda?

Porphyria cutanea tarda is a blistering skin condition caused by a substantial deficiency of the liver enzyme known as uroporphyrinogen decarboxylase (UROD). Skin changes generally occur on sun-exposed areas such as the face, neck, dorsal sides of fingers and hands.

Common symptoms reported by people with porphyria cutanea tarda

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with porphyria cutanea tarda

No data

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Compare treatments taken by people with porphyria cutanea tarda

No data

Let’s build this page together! When you share what it’s like to have porphyria cutanea tarda through your profile, those stories and data appear here too.

Got a question about living with porphyria cutanea tarda? Members in the forum might have the answers.

Who has porphyria cutanea tarda on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 3
40s 3
50s 4
60s 0
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 2
30-39 years 1
40-49 years 2
50-59 years 0
60-69 years 0
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 11

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7
Not Diagnosed 0

These charts show data from porphyria cutanea tarda patients who have completed their condition history
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