Lung cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is lung cancer?

Lung cancers are generally divided into two main categories: small cell lung cancers (SCLC) and non-small cell lung cancers (NSCLC). The type of cancer is determined by looking at the specific type of cancer cells that are present.

Common symptoms reported by people with lung cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with lung cancer

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
115
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Type
Procedures
How many have tried
60
Treatment name(s)

(Right upper lung lobectomy)
Type
Surgery
How many have tried
32
Treatment name(s)

(Opdivo)
Type
Prescription Drug
How many have tried
26
Treatment name(s)

(Tarceva)
Type
Prescription Drug
How many have tried
19
Treatment name(s)

(Keytruda)
Type
Prescription Drug
How many have tried
19
Treatment name(s)

(Gilotrif)
Type
Prescription Drug
How many have tried
13
Treatment name(s)

(Alecensa)
Type
Prescription Drug
How many have tried
13
Treatment name(s)

(Tagrisso)
Type
Prescription Drug
How many have tried
11
Treatment name(s)

(Xalkori)
Type
Prescription Drug
How many have tried
10

Data from patients with lung cancer, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with lung cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for adenocarcinoma (non-small cell lung cancer) (28 evaluations)
Side effects
nausea fatigue 51 more
Total evaluations
58
Treatment name(s)

(Total Skin Electron Beam Therapy (TSEBT))
Perceived effectiveness
for adenocarcinoma (non-small cell lung cancer) (11 evaluations)
Side effects
fatigue swallowing difficulty (dysphagia) 26 more
Total evaluations
28
Treatment name(s)

(Right upper lung lobectomy)
Perceived effectiveness
for adenocarcinoma (non-small cell lung cancer) (8 evaluations)
Side effects
shortness of breath with exertion Hospitalization 12 more
Total evaluations
15
Treatment name(s)

(Opdivo)
Perceived effectiveness
for adenocarcinoma (non-small cell lung cancer) (12 evaluations)
Side effects
fatigue muscle and joint pain 19 more
Total evaluations
22
Treatment name(s)

(Tarceva)
Perceived effectiveness
for adenocarcinoma (non-small cell lung cancer) (11 evaluations)
Side effects
diarrhea rashes (redness, swelling) 19 more
Total evaluations
13
Treatment name(s)

(Keytruda)
Perceived effectiveness
for adenocarcinoma (non-small cell lung cancer) (12 evaluations)
Side effects
fatigue intestinal cramps 12 more
Total evaluations
15
Treatment name(s)

(Gilotrif)
Perceived effectiveness
for adenocarcinoma (non-small cell lung cancer) (10 evaluations)
Side effects
diarrhea dry skin 28 more
Total evaluations
11
Treatment name(s)

(Alecensa)
Perceived effectiveness
for adenocarcinoma (non-small cell lung cancer) (9 evaluations)
Side effects
fatigue fluid retention (edema) 8 more
Total evaluations
11
Treatment name(s)

(Tagrisso)
Perceived effectiveness
for adenocarcinoma (non-small cell lung cancer) (5 evaluations)
Side effects
brittle hair broken nails 7 more
Total evaluations
5
Treatment name(s)

(Xalkori)
Perceived effectiveness
for adenocarcinoma (non-small cell lung cancer) (8 evaluations)
Side effects
diarrhea swelling in legs, feet and ankles 10 more
Total evaluations
10
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with lung cancer, who reported starting treatments within the last 5 years.
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Who has lung cancer on PatientsLikeMe?

  • 4 new patients joined this month
  • 9160 say lung cancer is their primary condition

Age
Age Proportion # of patients
<20 8
20s 79
30s 200
40s 444
50s 1640
60s 2965
70+ 2450
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 16
30-39 years 35
40-49 years 84
50-59 years 190
60-69 years 152
70+ years 54

Distribution of sex

Sex
Sex Proportion # of patients
Male 2369
Female 5632

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5872
Not Diagnosed 661

These charts show data from lung cancer patients who have completed their condition history
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