Pituitary adenoma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is pituitary adenoma?

Pituitary adenomas are typically benign, slow-growing tumors that arise from cells in the pituitary gland that are generally thought of as either hormone-producing that produce an active hormone in excessive amounts or hormone-inactive tumors that may cause problems related to the size of the tumor.

Common symptoms reported by people with pituitary adenoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with pituitary adenoma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Dostinex)
Type
Prescription Drug
How many have tried
2
Tried for
pituitary adenoma (2)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Cannabidiol oil)
Type
Other
How many have tried
1
Tried for
pain (1)

Data from patients with pituitary adenoma, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with pituitary adenoma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (3)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (7 evaluations)
Side effects
blurry vision dizziness with hypotension upon standing 1 more
Total evaluations
7
Tried for
pain (3)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
drowsiness
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)

(Dostinex)
Perceived effectiveness
for pituitary adenoma (2 evaluations)
Side effects
migraine headaches
Total evaluations
2
Tried for
pituitary adenoma (2)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) depressed mood (1)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)
Perceived effectiveness
for fatigue (5 evaluations)
Side effects
constipation feet tingling 1 more
Total evaluations
5
Tried for
fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
increased anxiety
Total evaluations
1
Tried for
depressed mood (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Cannabidiol oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with pituitary adenoma, who reported starting treatments within the last 5 years.
Last updated:

Who has pituitary adenoma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 14
30s 38
40s 78
50s 69
60s 25
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 12
20-29 years 25
30-39 years 32
40-49 years 31
50-59 years 7
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 52
Female 180

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 158
Not Diagnosed 3

These charts show data from pituitary adenoma patients who have completed their condition history
Last updated: