Spinal myoclonus

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is spinal myoclonus?

Spinal myoclonus is usually associated with a localized area of damage to spinal cord tissue. Types include Segmental Spinal Myoclonus, which involves a specific segment of the spinal cord and Propriospinal Myoclonus, which involves all of the spinal cord.

Common symptoms reported by people with spinal myoclonus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with spinal myoclonus

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tegretol)
Type
Prescription Drug
How many have tried
1
Tried for
spinal myoclonus (1)
Treatment name(s)

(Onfi)
Type
Prescription Drug
How many have tried
1
Tried for
spinal myoclonus (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
spinal myoclonus (1)
Treatment name(s)

(Tranxene)
Type
Prescription Drug
How many have tried
1
Tried for
spinal myoclonus (1)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Keppra)
Type
Prescription Drug
How many have tried
1
Tried for
spinal myoclonus (1)
Treatment name(s)
Type
Other
How many have tried
1
Tried for
depressed mood (1)

Data from patients with spinal myoclonus, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with spinal myoclonus

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tegretol)
Perceived effectiveness
for spinal myoclonus (1 evaluation)
Side effects
Total evaluations
1
Tried for
spinal myoclonus (1)
Treatment name(s)

(Onfi)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
spinal myoclonus (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for spinal myoclonus (1 evaluation)
Side effects
anger short term memory problems
Total evaluations
1
Tried for
spinal myoclonus (1)
Treatment name(s)

(Tranxene)
Perceived effectiveness
for spinal myoclonus (1 evaluation)
Side effects
Total evaluations
1
Tried for
spinal myoclonus (1)
Treatment name(s)

(Vistaril)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Keppra)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
spinal myoclonus (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with spinal myoclonus, who reported starting treatments within the last 5 years.
Last updated:

Who has spinal myoclonus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 5
30s 4
40s 11
50s 10
60s 10
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 1
30-39 years 3
40-49 years 5
50-59 years 3
60-69 years 3
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 17
Female 25

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 21
Not Diagnosed 2

These charts show data from spinal myoclonus patients who have completed their condition history
Last updated: