Amlyoidosis

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What is amlyoidosis?

Amyloidosis is a group of diseases in which protein is deposited locally in specific organs or throughout the body. Generally, primary amyloidosis affects nerves, skin, tongue, joints, heart and liver; secondary amyloidosis often affects the spleen, kidneys, liver and adrenal glands.

Common symptoms reported by people with amlyoidosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with amlyoidosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Decadron)
Type
Prescription Drug
How many have tried
2
Tried for
amlyoidosis (2)
Treatment name(s)

(Kyprolis)
Type
Prescription Drug
How many have tried
1
Tried for
amlyoidosis (1)

Data from patients with amlyoidosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with amlyoidosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Decadron)
Perceived effectiveness
for amlyoidosis (1 evaluation)
Side effects
hyperness insomnia 1 more
Total evaluations
1
Tried for
amlyoidosis (2)
Treatment name(s)

(Kyprolis)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
amlyoidosis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with amlyoidosis, who reported starting treatments within the last 5 years.
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Who has amlyoidosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 3
50s 22
60s 22
70+ 13
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 2
40-49 years 4
50-59 years 8
60-69 years 7
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 29
Female 31

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 29
Not Diagnosed 1

These charts show data from amlyoidosis patients who have completed their condition history
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