Hepatitis C

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is hepatitis C?

Hepatitis C is a viral disease that leads to inflammation of the liver caused by the hepatitis C virus transmitted primarily by contaminated blood and is often associated with transfusion and IV drug abuse. However, in some case the source of hepatitis C is unknown.

Common symptoms reported by people with hepatitis C

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with hepatitis C

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Harvoni)
Type
Prescription Drug
How many have tried
13
Tried for
hepatitis C (13)
Treatment name(s)

(Sovaldi)
Type
Prescription Drug
How many have tried
8
Tried for
hepatitis C (8)
Treatment name(s)
Type
Prescription Drug
How many have tried
6
Tried for
hepatitis C (6)
Treatment name(s)

(PegIntron Redipen)
Type
Prescription Drug
How many have tried
4
Tried for
hepatitis C (4)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
3
Tried for
Anxious mood (2) Insomnia (1)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
2
Tried for
Insomnia (1) Pain (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
2
Tried for
Anxious mood (1) Depressed mood (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
2
Tried for
Depressed mood (2)
Treatment name(s)

(Remeron)
Type
Prescription Drug
How many have tried
2
Tried for
Anxious mood (1) Insomnia (1)
Treatment name(s)

(Pegasys)
Type
Prescription Drug
How many have tried
2
Tried for
hepatitis C (2)

Data from patients with hepatitis C, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with hepatitis C

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Harvoni)
Perceived effectiveness
for hepatitis C (10 evaluations)
Side effects
Headaches Fatigue 6 more
Total evaluations
10
Tried for
hepatitis C (13)
Treatment name(s)

(Sovaldi)
Perceived effectiveness
for hepatitis C (4 evaluations)
Side effects
Headaches
Total evaluations
4
Tried for
hepatitis C (8)
Treatment name(s)
Perceived effectiveness
for hepatitis C (1 evaluation)
Side effects
Bowel urgency Crying 3 more
Total evaluations
1
Tried for
hepatitis C (6)
Treatment name(s)

(PegIntron Redipen)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hepatitis C (4)
Treatment name(s)

(Ativan)
Perceived effectiveness
for Anxious mood (3 evaluations)
Side effects
Total evaluations
4
Tried for
Anxious mood (2) Insomnia (1)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Insomnia (2 evaluations)
Side effects
Dizziness (vertigo)
Total evaluations
2
Tried for
Insomnia (1) Pain (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
Bad taste in mouth Diarrhea 1 more
Total evaluations
4
Tried for
Anxious mood (1) Depressed mood (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Depressed mood (2)
Treatment name(s)

(Remeron)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Anxious mood (1) Insomnia (1)
Treatment name(s)

(Pegasys)
Perceived effectiveness
for hepatitis C (2 evaluations)
Side effects
Depressed mood Flu symptoms and low white count 2 more
Total evaluations
2
Tried for
hepatitis C (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hepatitis C, who reported starting treatments within the last 5 years.
Last updated:

Who has hepatitis C on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 35
30s 85
40s 93
50s 220
60s 233
70+ 33
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 21
20-29 years 49
30-39 years 58
40-49 years 62
50-59 years 24
60-69 years 5
70+ years 0

Sex

Distribution of sex

59% Female
41% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 447
Not Diagnosed 13

These charts show data from hepatitis C patients who have completed their condition history
Last updated: