Cerebrospinal fluid leak
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What is cerebrospinal fluid leak?
A cerebrospinal fluid leak is a condition when the fluid contained in the spinal column and brain leaks out of its confined space. This can be caused by several reasons, including spontaneous cerebrospinal fluid leak, following a procedure such as a spinal tap (lumbar puncture) or trauma.
Common symptoms reported by people with cerebrospinal fluid leak
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with cerebrospinal fluid leak
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Cerebral spinal fluid leak repair
Type
Surgery
How many have tried
2
Tried for
cerebrospinal fluid leak
(2)
Treatment name(s)
Cranial Titanium Implant
Type
Surgery
How many have tried
1
Tried for
cerebrospinal fluid leak
(1)
Data from patients with cerebrospinal fluid leak, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with cerebrospinal fluid leak
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Cerebral spinal fluid leak repair
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
cerebrospinal fluid leak
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Treatment name(s)
Cranial Titanium Implant
Perceived effectiveness
for cerebrospinal fluid leak (1 evaluation)
Side effects
Total evaluations
1
Tried for
cerebrospinal fluid leak
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with cerebrospinal fluid leak, who reported starting treatments within the last 5 years.
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Who has cerebrospinal fluid leak on PatientsLikeMe?
- 88 patients have this condition
- 0 new patients joined this month
- 45 say cerebrospinal fluid leak is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 4 | |
| 20s | 2 | |
| 30s | 8 | |
| 40s | 24 | |
| 50s | 24 | |
| 60s | 15 | |
| 70+ | 3 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 1 | |
| 30-39 years | 6 | |
| 40-49 years | 5 | |
| 50-59 years | 3 | |
| 60-69 years | 1 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 18 | |
| Female | 63 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 21 | |
| Not Diagnosed | 1 |
These charts show data from cerebrospinal fluid leak patients who have completed their condition history
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