Exposure to DES diethylstilbestrol

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is exposure to DES diethylstilbestrol?

DES (diethylstilbestrol) is a synthetic hormone prescribed to pregnant women from 1938- 1971 in the U.S. to prevent premature deliveries and miscarriages. Exposure to the hormone increases the risk of developing certain diseases, and/or reproductive and urinary-tract issues.

Common symptoms reported by people with exposure to DES diethylstilbestrol

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with exposure to DES diethylstilbestrol

Let’s build this page together! When you share what it’s like to have exposure to DES diethylstilbestrol through your profile, those stories and data appear here too.

Got a question about living with exposure to DES diethylstilbestrol? Members in the forum might have the answers.

Compare treatments taken by people with exposure to DES diethylstilbestrol

Let’s build this page together! When you share what it’s like to have exposure to DES diethylstilbestrol through your profile, those stories and data appear here too.

Got a question about living with exposure to DES diethylstilbestrol? Members in the forum might have the answers.

Who has exposure to DES diethylstilbestrol on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 1
60s 1
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 3

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 0
Not Diagnosed 0

These charts show data from exposure to DES diethylstilbestrol patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have exposure to DES diethylstilbestrol through your profile, those stories and data appear here too.

Got a question about living with exposure to DES diethylstilbestrol? Members in the forum might have the answers.