Marfan syndrome

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What is Marfan syndrome?

Marfan's syndrome is a disorder of the connective tissue that is characterized by loss of elasticity. It affects most organs and tissues, especially the skeleton, lungs, eyes, heart, and the aorta.

Common symptoms reported by people with Marfan syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Marfan syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Spinal Chiropractic Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Toradol)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Minipress)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Stretch Yoga)
Type
Exercise
How many have tried
1
Tried for
Marfan syndrome (1) pain (1)

Data from patients with Marfan syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Marfan syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Spinal Chiropractic Therapy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Prozac)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Toradol)
Perceived effectiveness
for pain (1 evaluation)
Side effects
kidney problems
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Minipress)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
anxious mood (1)
Treatment name(s)

(Stretch Yoga)
Perceived effectiveness
No evaluations
Side effects
soreness
Total evaluations
1
Tried for
Marfan syndrome (1) pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Marfan syndrome, who reported starting treatments within the last 5 years.
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Who has Marfan syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 9
30s 16
40s 14
50s 19
60s 14
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 35
20-29 years 7
30-39 years 2
40-49 years 2
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

72% Female
28% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 52
Not Diagnosed 5

These charts show data from Marfan syndrome patients who have completed their condition history
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