X linked myopathy with excessive autophagy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is X linked myopathy with excessive autophagy?

X Linked Myopathy with Excessive Autophagy (XMEA) is a rare genetic disorder that affects males, although females can carry the gene. It is characterized by muscle weakness (which can lead to muscle degeneration) and an increased destruction of cells.

Common symptoms reported by people with X linked myopathy with excessive autophagy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with X linked myopathy with excessive autophagy

No data

Let’s build this page together! When you share what it’s like to have X linked myopathy with excessive autophagy through your profile, those stories and data appear here too.

Got a question about living with X linked myopathy with excessive autophagy? Members in the forum might have the answers.

Compare treatments taken by people with X linked myopathy with excessive autophagy

No data

Let’s build this page together! When you share what it’s like to have X linked myopathy with excessive autophagy through your profile, those stories and data appear here too.

Got a question about living with X linked myopathy with excessive autophagy? Members in the forum might have the answers.

Who has X linked myopathy with excessive autophagy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 0
30s 0
40s 0
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

0% Female
100% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from X linked myopathy with excessive autophagy patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have X linked myopathy with excessive autophagy through your profile, those stories and data appear here too.

Got a question about living with X linked myopathy with excessive autophagy? Members in the forum might have the answers.