Autoimmune encephalitis

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What is autoimmune encephalitis?

Autoimmune encephalitis is a condition in which the body's own immune system mistakenly attacks brain tissue, causing inflammation of the brain. It is mediated by antibodies, agents of the immune system.

Common symptoms reported by people with autoimmune encephalitis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with autoimmune encephalitis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
1
Tried for
autoimmune encephalitis (1)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
1
Tried for
autoimmune encephalitis (1)

Data from patients with autoimmune encephalitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with autoimmune encephalitis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
forgetfulness
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for autoimmune encephalitis (1 evaluation)
Side effects
Total evaluations
1
Tried for
autoimmune encephalitis (1)
Treatment name(s)

(Deltasone)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
autoimmune encephalitis (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with autoimmune encephalitis, who reported starting treatments within the last 5 years.
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Who has autoimmune encephalitis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 0
40s 3
50s 3
60s 4
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 2
50-59 years 1
60-69 years 0
70+ years 0

Sex

Distribution of sex

54% Female
46% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 0

These charts show data from autoimmune encephalitis patients who have completed their condition history
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