Sjogren-Larsson syndrome

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What is Sjogren-Larsson syndrome?

Sjogren-Larsson Syndrome is a autosomal recessive disorder, which usually presents in childhood. It is characterized by ichthyosis (dry, scaly skin), neurological problems, and eye problems. Symptoms usually do not worsen with age. Treatment includes skin creams, physical therapy, and others.

Common symptoms reported by people with Sjogren-Larsson syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Sjogren-Larsson syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Warm water therapy)
Type
Physical Therapy
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
1
Tried for
Sjogren-Larsson syndrome (1)
Treatment name(s)

(Xiidra)
Type
Prescription Drug
How many have tried
1
Tried for
Sjogren-Larsson syndrome (1)
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
1
Tried for
Sjogren-Larsson syndrome (1)
Treatment name(s)

(NatureMade Omega 3 Fish Oil)
Type
Supplement
How many have tried
1
Tried for
Sjogren-Larsson syndrome (1)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with Sjogren-Larsson syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Sjogren-Larsson syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Celebrex)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (2)
Treatment name(s)

(Lexapro)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Warm water therapy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Plaquenil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Sjogren-Larsson syndrome (1)
Treatment name(s)

(Xiidra)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Sjogren-Larsson syndrome (1)
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Sjogren-Larsson syndrome (1)
Treatment name(s)

(NatureMade Omega 3 Fish Oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Sjogren-Larsson syndrome (1)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Percocet)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Sjogren-Larsson syndrome, who reported starting treatments within the last 5 years.
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Who has Sjogren-Larsson syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 4
50s 5
60s 6
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 14

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 6
Not Diagnosed 0

These charts show data from Sjogren-Larsson syndrome patients who have completed their condition history
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