Chronic kidney disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is chronic kidney disease?

Chronic kidney disease (CKD) occurs when the kidneys fail to adequately filter toxins and waste products from the blood. The most common causes of chronic kidney disease are diabetes and high blood pressure. CKD can progress to complete kidney failure, also called end stage renal disease.

Common symptoms reported by people with chronic kidney disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with chronic kidney disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
8
Tried for
Pain (8)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
8
Tried for
Pain (8)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
8
Tried for
depressed mood (8) anxious mood (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
7
Tried for
anxious mood (7)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
7
Tried for
Pain (7)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
7
Tried for
depressed mood (7)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
6
Tried for
Pain (5) depressed mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
6
Tried for
Pain (6)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
6
Tried for
anxious mood (6) fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (4) anxious mood (1)
1 more

Data from patients with chronic kidney disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with chronic kidney disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Tylenol)
Perceived effectiveness
for Pain (7 evaluations)
Side effects
spaced out
Total evaluations
7
Tried for
Pain (8)
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (3 evaluations)
Side effects
difficulty urinating (dysuria) itching
Total evaluations
3
Tried for
Pain (8)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
anxious mood constipation 6 more
Total evaluations
5
Tried for
depressed mood (8) anxious mood (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
daytime tiredness sleepiness 1 more
Total evaluations
3
Tried for
anxious mood (7)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
swollen feet
Total evaluations
5
Tried for
Pain (7)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
nausea
Total evaluations
2
Tried for
depressed mood (7)
Treatment name(s)

(Elavil)
Perceived effectiveness
for Pain (5 evaluations)
Side effects
crying easily dizziness with hypotension upon standing 1 more
Total evaluations
6
Tried for
Pain (5) depressed mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (5 evaluations)
Side effects
drowsiness irritable bowel syndrome
Total evaluations
6
Tried for
Pain (6)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
Total evaluations
3
Tried for
anxious mood (6) fatigue (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
bad taste in mouth dizziness 1 more
Total evaluations
5
Tried for
depressed mood (4) anxious mood (1)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic kidney disease, who reported starting treatments within the last 5 years.
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Who has chronic kidney disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 9
20s 57
30s 175
40s 321
50s 569
60s 544
70+ 262
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 81
20-29 years 73
30-39 years 87
40-49 years 104
50-59 years 117
60-69 years 52
70+ years 14

Sex

Distribution of sex

67% Female
33% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 863
Not Diagnosed 27

These charts show data from chronic kidney disease patients who have completed their condition history
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