Aicardi-Goutieres syndrome

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What is Aicardi-Goutieres syndrome?

Aicardi-Goutieres Syndrome (AGS) is a rare genetic disorder that mainly affects the brain, immune system, and skin. Individuals with AGS usually show signs and symptoms within the first six months of life. Common characteristics include small head, feeding difficulties, spasticity and dystonia.

Common symptoms reported by people with Aicardi-Goutieres syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Aicardi-Goutieres syndrome

No data

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Compare treatments taken by people with Aicardi-Goutieres syndrome

No data

Let’s build this page together! When you share what it’s like to have Aicardi-Goutieres syndrome through your profile, those stories and data appear here too.

Got a question about living with Aicardi-Goutieres syndrome? Members in the forum might have the answers.

Who has Aicardi-Goutieres syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 0
30s 0
40s 2
50s 3
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 1
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

17% Female
83% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2
Not Diagnosed 0

These charts show data from Aicardi-Goutieres syndrome patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have Aicardi-Goutieres syndrome through your profile, those stories and data appear here too.

Got a question about living with Aicardi-Goutieres syndrome? Members in the forum might have the answers.