Anti myelin associated glycoprotein polyneuropathy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is anti myelin associated glycoprotein polyneuropathy?

Anti-myelin associated glycoprotein polyneuropathy is a type of autoimmune disorder where the body attacks specific proteins, myelin associated glycoprotein (anti-MAG). These anti-MAG antibodies disrupt the function of myelin and causes peripheral neuropathy.

Common symptoms reported by people with anti myelin associated glycoprotein polyneuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with anti myelin associated glycoprotein polyneuropathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Prilosec)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1
Treatment name(s)
Type
Supplement
How many have tried
1

Data from patients with anti myelin associated glycoprotein polyneuropathy, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with anti myelin associated glycoprotein polyneuropathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Prilosec)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for anti myelin associated glycoprotein polyneuropathy (3 evaluations)
Side effects
apathy cramps in toes 9 more
Total evaluations
3
Treatment name(s)
Perceived effectiveness
for anti myelin associated glycoprotein polyneuropathy (1 evaluation)
Side effects
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with anti myelin associated glycoprotein polyneuropathy, who reported starting treatments within the last 5 years.
Last updated:

Who has anti myelin associated glycoprotein polyneuropathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 1
30s 0
40s 0
50s 4
60s 0
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 1
60-69 years 1
70+ years 0

Sex

Distribution of sex

78% Female
22% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from anti myelin associated glycoprotein polyneuropathy patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have anti myelin associated glycoprotein polyneuropathy through your profile, those stories and data appear here too.

Got a question about living with anti myelin associated glycoprotein polyneuropathy? Members in the forum might have the answers.