18p-

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is 18p-?

18p-, also known as 18p minus syndrome or 18p deletion syndrome, is a rare chromosomal abnormality in which there is a deletion in part of the short arm of chromosome 18. Characteristics are varied in each individual but can include cognitive delays, vision problems, and heart defects.

Common symptoms reported by people with 18p-


Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with 18p-

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)

Data from patients with 18p-, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with 18p-

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(BuSpar)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
depressed mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with 18p-, who reported starting treatments within the last 5 years.
Last updated:

Who has 18p- on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 0
30s 8
40s 0
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 7
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 8

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 7
Not Diagnosed 0

These charts show data from 18p- patients who have completed their condition history
Last updated:
No data

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Got a question about living with 18p-? Members in the forum might have the answers.