What is Segmental Neurofibromatosis?
Neurofibromatosis is a genetic disorder of the nervous system that causes tumors to grow along the path of nerves. The disease is called segmental neurofibromatosis when tumors only affect one area of the body.
How do members experience Segmental Neurofibromatosis?
Top 5 symptoms reported by people with Segmental Neurofibromatosis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Segmental Neurofibromatosis*
Who has Segmental Neurofibromatosis on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 0 | |
20s | 0 | |
30s | 0 | |
40s | 1 | |
50s | 0 | |
60s | 0 | |
70+ | 0 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 0 | |
Female | 1 |