What is Segmental Neurofibromatosis?

Neurofibromatosis is a genetic disorder of the nervous system that causes tumors to grow along the path of nerves. The disease is called segmental neurofibromatosis when tumors only affect one area of the body.

How do members experience Segmental Neurofibromatosis?

Top 5 symptoms reported by people with Segmental Neurofibromatosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Segmental Neurofibromatosis*

Who has Segmental Neurofibromatosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 0
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 0
Female 1