Segmental Neurofibromatosis

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What is Segmental Neurofibromatosis?

Neurofibromatosis is a genetic disorder of the nervous system that causes tumors to grow along the path of nerves. The disease is called segmental neurofibromatosis when tumors only affect one area of the body.

Common symptoms reported by people with Segmental Neurofibromatosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Segmental Neurofibromatosis

No data

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Compare treatments taken by people with Segmental Neurofibromatosis

No data

Let’s build this page together! When you share what it’s like to have Segmental Neurofibromatosis through your profile, those stories and data appear here too.

Got a question about living with Segmental Neurofibromatosis? Members in the forum might have the answers.

Who has Segmental Neurofibromatosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

100% Female
0% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 0
Not Diagnosed 0

These charts show data from Segmental Neurofibromatosis patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have Segmental Neurofibromatosis through your profile, those stories and data appear here too.

Got a question about living with Segmental Neurofibromatosis? Members in the forum might have the answers.