Congenital neutropenia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is congenital neutropenia?

Congenital neutropenia is a rare, inherited condition of the bone marrow, which leads to the decreased production of neutrophils, a type of white blood cell in the body. As such, a person with this condition will have an abnormally low count of neutrophils.

Common symptoms reported by people with congenital neutropenia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with congenital neutropenia

No data

Let’s build this page together! When you share what it’s like to have congenital neutropenia through your profile, those stories and data appear here too.

Got a question about living with congenital neutropenia? Members in the forum might have the answers.

Compare treatments taken by people with congenital neutropenia

No data

Let’s build this page together! When you share what it’s like to have congenital neutropenia through your profile, those stories and data appear here too.

Got a question about living with congenital neutropenia? Members in the forum might have the answers.

Who has congenital neutropenia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 1
40s 0
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

100% Female
0% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from congenital neutropenia patients who have completed their condition history
Last updated:
No data

Let’s build this page together! When you share what it’s like to have congenital neutropenia through your profile, those stories and data appear here too.

Got a question about living with congenital neutropenia? Members in the forum might have the answers.