Bladder exstrophy

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What is bladder exstrophy?

Bladder exstrophy occurs when a child is born with their bladder outside of the body, protruding from the abdominal wall. The bladder and supporting structures themselves are also not properly formed. This can be repaired with surgery.

Common symptoms reported by people with bladder exstrophy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with bladder exstrophy

No data

Let’s build this page together! When you share what it’s like to have bladder exstrophy through your profile, those stories and data appear here too.

Got a question about living with bladder exstrophy? Members in the forum might have the answers.

Compare treatments taken by people with bladder exstrophy

No data

Let’s build this page together! When you share what it’s like to have bladder exstrophy through your profile, those stories and data appear here too.

Got a question about living with bladder exstrophy? Members in the forum might have the answers.

Who has bladder exstrophy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 2
30s 1
40s 2
50s 3
60s 1
70+ 1
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 7
Female 4

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 0
Not Diagnosed 1

These charts show data from bladder exstrophy patients who have completed their condition history
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